Immortal Bird

Maybe I ve finally beaten this thing, maybe three years struggle will not have been in vain. Maybe this is finally over . . . from Damon s blog, May 2004 A FAMILY S LOVE lies at the heart of this gifted boy s fight to survive. Born with a congenital heart defect that required surgery when he was a baby, Damon Weber lives a big life with spirit and independence that have always been a source of pride to his parents, Doron and Shealagh. But when Damon is diagnosed with a new illness as a teenager, his triumphant coming-of-age tale turns into a darker and more dramatic quest: his family s race against time and a flawed heath care system.Immortal Bird is a searing account of a father s struggle to save his remarkable son, a story of a young boy s passion for life, and a tribute to his family s love. It is also a story of the perils of modern medicine and the redemptive power of art in the face of the unthinkable